Episode 22 - Dr. Lori Wiener: Children with HIV/AIDS: Issues Of Survival, Disclosure, and Transition
Monday, June 15, 2009, 9:40:04 AM
In this podcast, Dr. Lori Wiener discusses her decades of work bridging clinical experience with research methodology to address the needs of children with HIV/AIDS and their families. Dr. Wiener offers guidance to helping professionals and families with regard to current challenges associated with survival and transition to adult care, diagnosis disclosure, child and parental adjustment, and child and parental survival.
review of hiv/aids podcast, Friday, October 28, 2011
By Amber C :
This particular podcast really caught my interest just by the title. I have always had an interest in the HIV/AIDS virus so I thought I would give this podcast a listen to. I really did not know much, nor really had I thought about the fact that children also are living with this virus. Although it is not a death sentence anymore, when the children see their parents dying from this virus, it reinforces their view that they too are going to die from this. One of the major discussions in this podcast was how to disclose to children that they have HIV, what it is and the course of action they need to take to prolong their life. I thought that how Dr. Wiener addressed the issue was very thoughtful and interesting. She basically says that you need to start by telling them they have a virus and that they need to take medicines for it. Every time the parent/caregiver adds new information, they start by saying "remember when I told you...". I can see how that would be effective, so that they learn from an early age what is wrong with them, what HIV is, and what is being done to help keep them healthy. When I first listened to this podcast, I didn't keep in mind that some children are adopted or in foster care and that may be a reason why they do not know their status. I was thinking to myself while listening, what would be a reason a parent would keep that from a child? Then I realized that child may be adopted and not know it. I thought that was very interesting, and made me look at it a little differently. Everyone has their own reasons and ways of disclosing that type of personal information so one shouldn't just assume it is a typical situation. Overall, I liked the podcast. I thought it was very informative and I ended up learning more about how children are affected by this virus.
review of dr. weiner's podcast, Monday, March 28, 2011
By Corinne Miga :
Prior to listening to the podcast by Dr. Weiner, I associated HIV generally with adult population. However, the work by Dr. Weiner and other clinicians has broadened my awareness that the disease has changed overtime and is now affecting communities, genders, and races besides the gay population. The importance of disclosing information to children with the disease is extremely important as a stigma exists for those with HIV. It is very important for children to learn of their disease in order to avoid high risk behaviors. The disease should also be disclosed to children so that they can learn to except and deal with the disease in their own ways. Parents must provide open communication about the disease and build a sense of trust with their child in regards to questions and concerns that will exist. While it is a chronic disease, it is important for Social Workers to continue to research effective services available to those to learn to not only cope but effectively live with the disease.
hiv/aids & child disclosure, Saturday, July 24, 2010
By Dana Stonebraker :
It was amazing to hear how much Dr. Wiener has done in her career and how she has worked in more than one area. It was interesting to hear about children with HIV and what affects them. Many who discussed HIV and AIDS do not focus on children. Dr. Wiener made great points in saying that how children are told about their status as HIV positive will effect many other areas of their handling of the disease. If a child is told that it's a secret and that no one should know, they may have trouble discussing it later in life. As Dr. Wiener said, it is important that parents and children are able to build trust and an open line of communication so that as the child grows they are able to face the disease together. It was interesting to hear that how the parent is handling the disease is incredibly important and has a large impact on the child. Many parents will self-blame or be emotional in regards to their child's HIV status, which can then effect how the child is disclosed to and what may come of that. Telling a child they have HIV is not an easy thing, and working with the parents to build communication and work towards disclosing is not easy either. It is important to understand that HIV is no longer a terminal illness, but a chronic illness (which I found to be a very impactful point in the interview).
children with hiv/aids, Wednesday, July 21, 2010
By Chevaun L. :
Dr. Lori Wiener’s podcast detailed a lot of information on a topic that I have not previously given much thought to.
The thought of adults having problems with disclosing their status of having HIV/AIDS was more of a talked about topic. Dr Lori focused on children dealing with HIV/AIDS virus and giving suggestions on helpful ways to assist them in being able to disclose their status. It caught my attention because she talked a lot about the parents’ ability to be able to disclose themselves effects the child’s ability to disclose. She pointed out that if the parent is open then the child is more likely to be open with their status and vice versa. This became a concern due the fact that some parent will prolong telling their child for reasons such as they are embarrassed of their own status or they feel guilty for giving the virus to their children. But with children becoming sexually active at younger ages it appears more vital for children to make aware of their status for the health and safety of others. I thought it was a great the Dr. Lori pointed out the most important part in the process of assisting children to self disclose which is having open communication and trust within the parent-child relationship.
children with hiv/aids, Wednesday, January 27, 2010
By Erica Nowak :
This interview with Dr. Lori Wiener was very informative. I wish the interview would have been longer and gone more in depth about the new studies with families and children living with HIV and/or AIDS. Dr. Wiener mentioned the difficulties in changing the focus of HIV/AIDS services from gay men to services that would benefit people of all ages, colors, and sex. I feel that services are often changed throughout time as researchers and clinicians discover more of the populace that those services may benefit. Services that stay the same after knowledge base changes will most likely become outdated, ineffective, and possibly even harmful. Dr. Wiener also talks about how telling a child about their HIV/AIDS status is more of a process than a single event. I had not considered how much work may actually go into telling a child about their HIV/AIDS status and helping them to comprehend their situation. It may take a child their entire life to realize and/or accept what their HIV/AIDS status means to them self and their family members. Not only does a child face accepting that they may die from the HIV/AIDS disease, but in many cases they also face the challenge of loving and/or accepting their parents who may have given them this life threatening disease. That does not even take into consideration the added difficulties and stress that the parent/guardian may be going through concerning the disclosure of this information to their child. In conclusion, I believe that the most important statement made by Dr. Wiener throughout the interview was that it is important not to get caught up on the title of a disease, but rather to instead focus on the people who have it.
children with hiv/aids, Thursday, January 21, 2010
By Katie C. :
Dr. Wiener provides an informative and thorough discussion about children and families with HIV/AIDS and the sensitive, complicated issues that they are faced with. Dr. Wiener focuses especially on the issue of disclosure to children about their HIV status. She describes disclosure as a process that may last a lifetime. It is important to remember that disclosing a child’s HIV status is not a single step, but will evolve as the child develops. Another issue that is discussed in this podcast is the fact that many children with HIV/AIDS have experienced the death of a family member and/or friend. Dr. Wiener explains that this may lead to “survivor guilt”, which is something I had not previously considered.
This podcast is especially informative to professionals who work with children with HIV/AIDS. Dr. Wiener provides useful information on the role of professionals in the disclosure process, including giving children words to describe their illness, which can be built on later. I would recommend this podcast to those who wish to learn more about issues concerning children and families with HIV/AIDS as well as professionals who work with these individuals.
DISCLAIMER: The content shared by the presenter(s) and/or interviewer(s) of each podcast is their own and not necessarily representative of any views, research, or practice from the UB School of Social Work or the inSocialWork® podcast series.